Resources to help navigate life in the hospital including understanding who’s who in the hospital, medical jargon, advocacy tips, keeping your child engaged, and more

Resources to help navigate life at home including therapy, appointments, medication schedules, home nursing, supplies, inclusion in everyday activities, toy suggestions

Panel Discussions

Panel: Our Supports

This panel is geared towards the support networks for families with medically complex children. While this journey is difficult for the immediate family and child, it can have its own unique challenges for those who love and want to support them emotionally and financially.

Panel 1: Emotional Support – How can I emotionally support someone while their child is receiving inpatient care?
Panel 2:  Financial Support – How can I financially support someone while their child is receiving inpatient care? (Premieres September 15, 2023)
Panel 3: Ongoing/Outpatient Care – How can I support loved ones who are caring for their child outpatient? 

a 3 year old boy sleeping in a hospital bed. The room is lit by natural light and has a window that overlooks trees.
two boys in bright orange shirts holding Nerf guns. One boy is in a wheelchair and is receiving some support to hold the Nerf gun. He has nasal cannulas for oxygen support. The other boy is leaning on the wheelchair looking at the camera. Both boys have big smiles.
A young boy with blue glasses sitting in a supported seat. The seat has a tray and a Blue's Blue's book is open on the tray. He has on wrist braces and a very big smile.