Our son Kade was born in 2018 with a brain malformation called Vein of Galen Malformation (VOGM). Kade's malformation caused significant brain damage, and as he got older, he became more and more medically complex. Some of his main diagnoses were spastic quadriplegic cerebral palsy, dystonia, hydrocephalus, feeding tube dependency, hypothermia, chronic pancreatitis, respiratory distress, … Continue reading A Little About Us…
